Selecting one or more of the options below will update the content below.

Show / Hide Filters
Age Group
Type of Study
Study Format
Location
Target Population
  • Observational Study
    Online

    What is this Study about?

    This study aims to identify the gaps in the community-based supports and services to meet the needs of people living with dementia and their care partners. We hope that the findings will help inform the development and improvement of programs and services.

    Eligibility Criteria

    • People living with dementia, mild cognitive impairment, or memory/cognitive challenges
    • Caregivers of people with dementia, mild cognitive impairment, or memory/cognitive challenges
    • Health care professionals
    • Community service or social care providers
    • Researchers in the field of dementia
    • Living in Canada

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    This study evaluates an at-home, digital cognitive screening tool for older adults experiencing memory changes across the dementia continuum. Participants will complete a brief series of engaging, online brain games and surveys to determine the tool's accuracy compared to traditional clinical assessments. The goal of this study is to provide accessible, patient-friendly monitoring of brain health that reduces the need for clinic travel and lowers barriers to early detection of dementia.

    Eligibility Criteria

    You are eligible to participate if you:

    Are 50 years of age or older

    Either have healthy cognition or are experiencing noticeable memory or thinking changes (Subjective Cognitive Decline), or have a clinical diagnosis of Mild Cognitive Impairment (MCI) or dementia.

    Have access to a computer, laptop, or tablet with a reliable internet connection.

    Are able to provide informed consent, or have a legally authorized Substitute Decision Maker (SDM) who can provide consent on your behalf.

    Have adequate vision and motor skills to view a screen and tap or click to respond to prompts (such as a choice reaction time task), using glasses or standard aids if necessary.

    Are able to read and communicate in English.

    Do not have comorbid psychiatric conditions that interfere with cognitive function Do not have a history of brain injury or neurodevelopmental disorders

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    We developed a resource to support substitute decision-makers as they work through issues related to the sexual expression of individuals living with dementia in long-term care homes. The purpose of this pilot is to evaluate and assess how the content and format of the resource is received by a sample of substitute decision-makers and longterm care staff members. Through online surveys, we will be seeking feedback related to accessibility, potential usefulness in practice, effectiveness in increasing awareness and preparedness to address issues related to sexual expression.

    Eligibility Criteria

    - are a substitute decision-maker of a person living with dementia in residential long-term care in Alberta or Ontario OR someone currently working with people living with dementia in residential long-term care in Alberta or Ontario;

    - are a person who is 18 years of age or older;

    - are a person able to read and write in English

    Recruitment End Date

  • Clinical Trial
    In-Person

    What is this Study about?

    This study is a pre-screening process used to assess participants' potential eligibility for Roche interventional Alzheimer's disease studies.

    Eligibility Criteria

    Male or female participants aged 50 years of age to 90.
    Report of objective or subjective memory concerns (by the participant and/or their informant) within the last year with or without a previous clinical diagnosis of MCI or dementia due to AD.

    Recruitment End Date

  • Clinical Trial
    In-Person

    What is this Study about?

    The purpose of this study is to find out whether treatment with VHB937 is safe and beneficial in people with early Alzheimer's disease. The study will evaluate the safety of VHB937, as well as its effects on memory and other thinking abilities, on daily activities, and on changes in the brain. The study will also observe and measure how VHB937 is processed by the body and how the body responds to it.
    Official Title

    Eligibility Criteria

    Male or female participants aged 50 years of age to 85.
    Must have a study partner
    Diagnosis of Mild Cognitive Impairment (MCI) due to AD or mild AD

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    This research study focuses on resilience, defined as a trajectory in which an individual can not only adapt but enhance and grow in challenging circumstances. This research aims to: 1) explore resilience-related behaviours in the context of informal Plwd caregiving by examining which behaviours are related to resiliency and how these behaviours are meaningful to caregivers and 2) determine the role of environmental and individual factors in resiliency of caregivers of Plwd. I gave begun the first part of this study, will involved forming a caregiver research partner team to help to identify potential behaviours, characteristics and resources that promote resiliency in caregivers. They have worked with me in further developing research questions and methodology for a large-scale survey study, which I am recruiting for now. Choice of survey measures will be guided by both previous literature and research partner input. This research also includes a cognitive component in order to ascertain the role of cognitive abilities in resiliency. The results of this research will assist in determining the most appropriate social and community supports for caregivers of Plwd and the individual, cognitive, psychological, and social factors that need to be considered when determining suitability between specific supports and individual caregivers. Improving supports for caregivers will improve both caregiver and PlwD health and well-being, and allow Plwd to live at home for longer.

    Eligibility Criteria

    - You are currently an unpaid caregiver for someone living with dementia in Canada

    - You have been in this caregiving role for at least 1 year

    - The person you care for may live with you, in their own home or in long-term care

    - You must be able to complete an online questionnaire in English

    - You have access to an internet connection and device

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    This study explores the experiences of family and friends of long-term care residents. It focuses on how they experience stress, burden, and mental health challenges, and how a single-session online Acceptance and Commitment Therapy (ACT) or educational materials may help. We will use the information gathered from questionnaires and interventions to understand the effectiveness of these supports and to develop recommendations for improving resources, strategies, and interventions to better meet the needs of family and friends, helping them manage stress and maintain wellbeing while caring for someone in long-term care.

    Eligibility Criteria

    You are eligible to participate if you:

    - are at least 18 years old

    - currently reside in Canada

    - have a family member or friend who currently lives in long-term care

    - are not currently receiving psychological treatment

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    Assistive technology products are things that help you function or carry out activities more easily by yourself. Products could be any devices, equipment, instruments, or software. Examples could be mobile phone apps that provide calendar reminders, switches that turn off stoves, or walkers.

    Assistive technology services are activities or resources that help you to use or maintain assistive technology products. Services refer to assessment, training, and maintenance that help with choosing, using, and repairing assistive technology products.

    Getting these products and services means having to contact different organizations. If these products and services could be bundled as one unit, it may help persons with dementia get them more easily and potentially reduce costs. Right now, policymakers need more information about providing assistive technologies as bundles.

    The purpose of the study is to learn about your experiences with accessing and using products and services for managing dementia. This information will help us to know what should be included in bundles.

    For persons with dementia: We would like to interview you now to understand your past and current experiences. We would also like to interview you each year for up to three years (for three interviews) to see how your experiences change over time. You may leave at any time.

    For care partners: The purpose of the surveys is to learn about your views and experiences with accessing and using products and services for managing dementia. This information will help us to know what should be included in bundles. If interested, you may also take part in longitudinal interviews (two interviews, one annually) after the initial survey in year one to see how your experiences changed over time. You may leave at any time.

    For healthcare providers: The purpose of the surveys is to learn about your views and experiences with assisting persons with dementia and care partners to access and use products and services for managing dementia. This information will help us to know what should be included in bundles and how delivery may be improved. If interested, you may also take part 6 / 10 in longitudinal interviews (two interviews, one annually) after completing the initial survey in year one to see how your experiences changed over time. You may leave at any time.

    Eligibility Criteria

    People with dementia:

    - Are a Canadian resident who can speak English or French

    - Live at home (not care home)

    - Able to respond to questions about yourself and your assistive technology product and service use

    - Have a score 25 or below on the Montreal Cognitive Assessment (will be conducted by research team prior to interview)

    - Able to provide consent (or assent, with a substitute decision maker providing consent)

    Care partners:

    - Are a Canadian resident who can speak English or French

    - Family or friend who provides 5 hours or more of support a week for someone with dementia living at home (not a care home)

    - Able to respond to questions about yourself and your assistive technology product and service use - Able to provide consent Healthcare providers:

    - Are a Canadian resident who can speak English or French

    - A healthcare provider (such as physician, nurse, therapist, social worker) who works with 8 / 10 persons with dementia

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    The aim of this study is to understand how people with dementia, family/friend carers and healthcare providers experience the Driving and Dementia Roadmap website. This website contains resources to help people in the decision-making about when to stop driving and adjust to life after driving. We are also interested in knowing how the Driving and Dementia Roadmap may impact how people manage stopping to drive. The findings of this study will be used to improve and ensure that resources, like the Driving and Dementia Roadmap will continue to be available for people with dementia and those who support them. 

    Eligibility Criteria

    You are eligible to participate if you are a: 

    a) Person living with dementia who is still driving or has stopped driving within the past 2 years 

    b) Family member or friend who is caring for or providing support to a person with dementia who is still driving orhas stopped driving within the past two years 

    c) Healthcare provider (physician, occupational therapist, nurse practitioner) who cares for people living with dementia 

    Recruitment End Date