The Alzheimer Society Research Portal connects researchers with Canadians looking to participate in research studies. On this website, find active studies that you can participate in to help advance research on dementia.
You are invited to participate in a study examining how a social robot can be used as a training and support tool to help dementia caregivers connect with and support multiple residents living with dementia. A supporting mobile app has been developed through co-design sessions with dementia caregivers. We are seeking caregivers’ insights into their needs and expectations for this social robotic support system.
Information collected will be anonymized, stored securely in our repository, and disposed of when it is no longer needed.
You are eligible if you are a dementia caregiver (whether a new caregiver or an experienced caregiver)
Apathy, or reduced interest, initiative and emotion, is common in people living with Alzheimer’s disease and can affect quality of life and functioning. This study will test whether combining methylphenidate, an oral medication, with intermittent theta burst stimulation (iTBS), a non-invasive brain stimulation treatment, is more effective than iTBS alone for treating apathy in dementia. Information collected will help determine whether this combined approach may improve apathy and quality of life for people living with dementia and their care partners.
This study aims to understand dementia caregivers' experiences, challenges, and training needs to help guide the development of a social robotic training system. The proposed system is envisioned to use role-playing scenarios based on the emotional behaviours and past identities of people living with dementia. A supporting mobile application is also being developed to work with the robot's training features. Caregivers' perspectives will help identify their needs and expectations for this social robotic training system.
Participants must be (1) 18 years of age or older, (2) have past, current, or recent direct experience caring for a person living with a dementia-related disorder, and (3) be able to participate in a focus group or one-on-one interview conducted in English. Both formal (professional) and informal (family) caregivers are eligible to participate.
This study explores dementia stigma within South Asian communities in Canada, a group that has been underrepresented in dementia research. Using a focused ethnographic approach, it aims to understand community beliefs and experiences related to dementia and identify ways to create a culturally appropriate dementia-friendly society.
The study will: Examine South Asian cultural understandings of dementia and dementia-related stigma. Investigate how dementia affects the overall well-being of people living with dementia, their families, and caregivers. Explore how individuals make decisions about seeking healthcare and support. The research also seeks to understand how social, cultural, structural, and political factors contribute to dementia stigma and how culturally relevant anti-stigma interventions can be developed.
Expected outcomes include: Generating new knowledge about dementia stigma in South Asian communities. Increasing awareness and promoting dementia-friendly environments. Sharing findings through academic publications, conferences, community presentations, and multilingual infographics in Bengali, Hindi, and Urdu to reach a broader audience.
You are eligible to participate if you:
- live with dementia or provide care for a loved one living with dementia
- live in the Greater Toronto and Hamilton Area (GTHA)
- connect your roots or ethnicity to Bangladesh, India, or Pakistan
- are sixteen years of age or older
- can provide consent
- speak English, Hindi, Urdu, or Bengali
Despite the clinical benefit and favourable safety profile of using focused ultrasound to manage tremor caused by Parkinson’s Disease, there is currently limited gender and cultural diversity among the patients we treat. We will use questionnaires and patient-led discussions to identify factors that prevent (i) women and (ii) a broader range of races and ethnicities from considering focused ultrasound to manage tremor.
Have been diagnosed with Parkinson's Disease; Must speak English
This study is exploring the viability of a potential treatment for cognitive decline in dementia by attempting to improve the brain's ability to hold onto information temporarily while doing things like reading lists, having a conversation, or problem-solving. The results from this study will inform future research in improving working memory and cognition in people living with dementia.
You are eligible to participate if you are:
1) Diagnosed with Dementia and/or memory loss by a clinician
2) Exhibit adequate oral communication skills and cognitive function sufficient to obtain a score over 10 on the Mini-Mental State Exam
3) Over the age of 55
4) Speaks English
This study examines how Black family caregivers in the Greater Toronto Area experience and access social support while caring for a relative living with dementia. Using Straussian Grounded Theory informed by Critical Theory and Intersectionality, the research explores how factors such as race, culture, gender, and community shape caregiving experiences and support-seeking behaviours. Findings will be used to develop theory grounded in the lived experiences of Black caregivers, and to inform more culturally responsive dementia care policies, services, and supports across Canada. This study has been approved by the York University Research Ethics Board (Protocol 130, April 2026).
You are eligible to participate if you:
The goal of this study is to investigate whether very small doses of a drug called levetiracetam (LEV) may reduce abnormal brain signaling in the brain in individuals who are at an increased risk for developing Alzheimer's Disease. Only participants who show the abnormal brain signaling on a functional MRI (fMRI) scan of the brain will be enrolled in the study. Enrolled participants will receive 4 weeks of treatment with LEV and 4 weeks of treatment with placebo (a sugar pill). The study involves cognitive testing, genetic testing, bloodwork, ECGs, questionnaires and several brain imaging scans.
• Are between 55-85 years of age
• Have a parent or sibling with Alzheimer’s disease or with dementia that may be due to Alzheimer’s disease (even if not diagnosed as such)
• Feel your memory is getting worse
• Get normal scores on tests of thinking and memory (will be done as part of the study)
• Are able to undergo brain MRI scans
• Have a study partner (friend or family member) willing to answer questionnaires about you
• Show increased brain signaling during the screening fMRI scan (Note: We anticipate that most people who sign up for the study will NOT show the increased brain activity levels required to qualify for the study treatment)
This study looks at how an at-home nature-based virtual reality (VR) program may help people living with Alzheimer’s Disease manage behavioural and psychological symptoms of dementia (BPSD), such as depression. Caregivers and/or study partners will have the option of taking part in the study and providing feedback regarding the VR intervention. This project will explore how virtual reality can be used as a non-pharmacological approach to prolong aging in place for individuals with BPSD, as BPSD contributes to rates of institutionalization.
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