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Identifying Research Priorities for Frailty and Dementia: Results from an International Stakeholder Survey

What is this Study about?

In the past, frailty and dementia were treated as distinct entities; however, it is now recognized that they share a complex relationship. As a result, there is an urgent need for the joint investigation of frailty and dementia. Our survey aims to bring together perspectives from stakeholders worldwide who share an interest in frailty and dementia. We are collecting data over the next several months, via various promotional "waves." Once we reach adequate participation and thematic saturation, we anticipate that data analysis and knowledge dissemination will take approximately six months.

What Will Happen in This Study?

Participants will complete a consent form, followed by a brief survey that includes participant characteristic questions and an open-ended question on frailty-dementia research priorities. The total time commitment is approximately 10–15 minutes.

Who is Eligible to Participate in this Study?

  • You are 18 years of age or older.
  • You have an interest in frailty and dementia.
  • This includes researchers, healthcare professionals, policy and decision-makers, older adults, care partners, advocates, and others with relevant interest or experience.
  • You speak English.

 

Get in Touch About this Study

Legal Disclaimer

Any materials or links provided herein are strictly for informational purposes only. The Alzheimer Society of Canada does not endorse nor recommend any of the manufacturers, products or institutions mentioned in any of these links or listings as suitable or appropriate for your particular situation or circumstances and disclaims any liability with respect to representations, warranties, including fitness for an intended particular use or purpose, and all other claims relating thereto, all of which remain strictly with the manufacturer or institution.

In no event shall the Alzheimer Society of Canada or any third parties mentioned on the website be liable for any damage (including, without limitation, incidental and consequential damages for personal injury/wrongful death, lost profits or damages resulting from lost data or business interruption) or personal injury (including death) resulting from the use, misuse or inability to use any activity, product or service mentioned herein, whether based in warranty, contract, tort or any other legal theory.

Everyone considering participating in any activity is encouraged to speak with their own doctor or health-care team before participating in any activity that may impact their health or well-being.

Observational Study

Target Population

Healthy volunteers, Caregivers, Researchers and Healthcare Professionals, Client Service Staff, Family members, Person living with dementia, Person living with Alzheimer’s disease, Person at risk of Alzheimer's disease (AD) or living with pre-clinical AD, Person living with mild cognitive impairment, Person living with Parkinson’s disease dementia, Person living with Huntington’s disease dementia

Study Location

Online
Newfoundland and Labrador

Study Contact

Dr. Nick Bray
CIHR Postdoctoral Fellow
Memorial University

Recruitment Start Date

July 4, 2026

Recruitment End Date

December 31, 2026
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