What is this Study about?

This study explores how adult day programs affect the lives of people living with dementia and their caregivers across several Canadian regions. Over time, we gather information about health, well-being, daily experiences, and quality of life of people living with dementia who attend day program and their caregivers. We also aim to learn about day programs themselves, such as their activities, staffing, challenges, and successes. By combining surveys, interviews, and focus groups, our program of research aims to understand what makes day programs helpful, where challenges exist, and how day program can better support families, and people who use them.

What is this Study about?

The objective of this study is to better understand caregivers’ perspectives regarding the pharmacological management of the behavioral and psychological symptoms of dementia (BPSD). While current recommendations are largely based on the opinions of healthcare professionals and experts, the viewpoint of caregivers remains underexplored. By better understanding their experience, we hope to contribute to improved guidelines and care for individuals with neurocognitive disorders. 

What is this Study about?

The aim of this study is to understand how people with dementia, family/friend carers and healthcare providers experience the Driving and Dementia Roadmap website. This website contains resources to help people in the decision-making about when to stop driving and adjust to life after driving. We are also interested in knowing how the Driving and Dementia Roadmap may impact how people manage stopping to drive. The findings of this study will be used to improve and ensure that resources, like the Driving and Dementia Roadmap will continue to be available for people with dementia and those who support them. 

What is this Study about?

This study explores the air travel experiences of people living with dementia and their travel companions. We want to understand moments that may feel stressful, confusing, or overwhelming when travelling by air. The information gathered will be used to create recommendations for airlines, airports, and policymakers, helping to make air travel more dementia-friendly, supportive, and enjoyable for people living with dementia and their families.

What is this Study about?

This study explores the hospital experiences of people living with dementia and their care partners, focusing on how hospital and emergency department processes and interactions, often influenced by dementia stigma, influence care quality and outcomes. Insights gathered through interviews will identify barriers and opportunities to improve hospital care for this population. Findings will be used to develop recommendations that promote more responsive, inclusive, and compassionate hospital practices for people living with dementia and their care partners.

What is this Study about?

The goal of this study is to explore the experiences of caregivers who are managing both their caregiving responsibilities and their own health needs, in order to better understand the challenges they face and to identify ways to improve support for them. The findings of this study are expected to help inform policy formation, intervention planning and design that addresses the unique needs of ill-caregivers. The knowledge generated through this study will enhance caregivers’ capacity and sustainability, thereby supporting their ability to deliver high-quality care to older adults while maintaining their essential role within the healthcare system.

What is this Study about?

We are inviting caregivers, healthcare providers, community organizations, and Alzheimer’s societies to take part in a research study focused on improving support for people caring for individuals with Alzheimer’s disease. Compassionate palliative care is essential for individuals with dementia and their caregivers. However, many families living in rural settings cannot access palliative care unless it is through virtual methods. This study aims to address these challenges by involving caregivers and healthcare professionals to co-design virtual palliative care support.

What is this Study about?

This study explores Deep Brain Stimulation (DBS) as a potential treatment for mild Alzheimer’s disease (AD). In this study, the mild electrical stimulation is delivered to a part of the brain called the Pedunculopontine Nucleus (PPN), which helps regulate cognitive and sleep-related brain rhythms. The trial will recruit a small group of participants to evaluate the safety, feasibility, and preliminary efficacy of DBS-PPN in treating AD. The goal of this study is to see if targeting this part of the brain with DBS can help people living with mild AD improve their memory, thinking skills, and sleep quality.

What is this Study about?

Help Us Improve Support for Alzheimer’s Caregivers

We are inviting caregivers, healthcare providers, community organizations, and Alzheimer’s societies to take part in a research study focused on improving support for people caring for individuals with Alzheimer’s disease.

What is this study about?
We know that caregiving is a journey that changes over time, but many caregivers don’t have access to tools or services that meet their evolving needs. This study aims to change that by bringing together caregivers and professionals to co-create practical resources and tools that support caregivers through each stage of the disease.

What will participation involve?
Participation will mostly take place virtually and includes online surveys, focus groups, and/or one-on-one interviews through secure platforms like Zoom or Microsoft Teams. You’ll be asked about your experiences with caregiving and the services available to you. Later, we’ll host in-person co-design sessions to work together on building useful tools and guidance for caregivers.

Why join?
By participating, you’ll have the chance to reflect on your experience, identify gaps in current services, and help shape resources that better support caregivers like you. You may also learn about services you didn’t know existed. Your input will directly inform more responsive and timely support for caregivers and people living with Alzheimer’s.