Help break down stigma and social isolation
“My mom was afraid that if she took a memory test and there was any sign of trouble, she would be locked up. I had no idea she had this fear. If the fear had not existed, I believe she would have agreed to a test a year sooner.” – Caregiver
Recommendation 1: Invest in a province-wide campaign to break down stigma surrounding dementia.
Stigma is one of the biggest challenges for people living with dementia. A recent study found more than 70 per cent of people agreed that people living with the disease experience some form of stigma.1 Negative perceptions from friends, family and even health-care providers can stop people from seeking a diagnosis, getting support and talking openly about what they’re going through.
Stigma also delays diagnosis. Many people feel shame, fear or embarrassment about their symptoms. In a national survey, one in five participants said they would avoid seeking help because of stigma and nearly half said they would feel ashamed if they were diagnosed with the disease.2 This means people are missing out on crucial early support that could help them live well for longer with dementia, placing more stress on families and the health-care system.
Canadians living with dementia have said that reducing stigma is their number one priority.3 Global research also shows that public education and awareness campaigns are the best way to change attitudes and improve participation in dementia screening.4
That’s why we’re asking for a $10 million investment over three years for a province-wide dementia awareness campaign, delivered in partnership with the Alzheimer Society of BC and Yukon. This would help challenge stereotypes, build understanding and support and create more compassionate communities.
Tell your MLA: Ask your MLA to support a comprehensive public awareness campaign that fights stigma and increases understanding of dementia.
Share your story: Tell your MLA how stigma, misunderstanding or stereotypes about dementia have affected you or your family. Let them know why it’s important that the public understands dementia better.