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Alzheimer Society: History of the Organization
   
 
In this section:
Introduction
Alzheimer Society Milestones
Highlights of Our Work
30th Anniversary

Alzheimer Society Milestones

1977:
The Alzheimer Society is established when researchers at the University of Toronto and Surrey Place Centre who are investigating Alzheimer's disease become deeply concerned about the lack of support available to families affected by the disease. A Steering Group, composed of researchers, family members, professional staff and a resource person, is formed.

1978:
It becomes clear to the Steering Group that some form of an organization is needed and it identifies three major goals: family support, education and research. T
he Steering Group expands and becomes an Interim Board of Directors. The organization is incorporated federally under the name Société Alzheimer Society, the first organization of its kind in the world. Forty-five people attend the founding meeting of the Alzheimer Society. A bank account for the Alzheimer Society is opened with an initial deposit of $100.

1979:
The Society receives charitable status as a non-profit organization. Working committees are established in each of the three identified areas of focus. Local chapters are formed in Toronto, Hamilton, London and Guelph, Ontario and regional representatives are identified in every province.

1980:
In addition to three standing committees (Education, Research and Family Support), the Board activates a Finance/Fundraising Committee to generate funds for Society programs.

In these early years, the Alzheimer Society (known to many as the Alzheimer Movement) works:

  • to provide support to people with Alzheimer's disease and related conditions, their relatives and/or care providers
  • to represent people with Alzheimer's disease and other concerned individuals and groups before all levels of government
  • to promote public and professional awareness of the disease and the fact that help is available
  • to support and encourage research into Alzheimer's disease and related conditions

1984:
The Alzheimer Society of Canada joins the Alzheimer's Disease and Related Disorders Association in the U.S. (known now as the Alzheimer's Association) and representatives from seven other countries to form Alzheimer's Disease International.

1985:
The Society creates a Research Policy Committee to advise the Board and give policy direction in research and a Research Review Panel of academic researchers to review submissions for research grants.

1986:
The Society's Executive Director, Vince Gillis, begins a two-year term as Acting Secretary-General of Alzheimer's Disease International.

The general membership approves the establishment of a three-tier system with:

  • a national office (known as the Alzheimer Society of Canada) to co-ordinate Canadian and international activities
  • provincial organizations to liaise with local chapters and support groups
  • chapters and support groups to offer direct services to people with Alzheimer's disease and their families

1987:
The Society enters into an affiliation agreement with the Nova Scotia provincial association.

The Society adopts a new Mission Statement:

"To alleviate the personal and social consequences of Alzheimer's disease and to promote the search for a cause and cure."

1988:
The Board ratifies affiliation agreements with the British Columbia, Saskatchewan, Manitoba and Alberta provincial associations.

1990:
The Alzheimer Society convenes a strategic planning session to develop Vision Statements for the future, identify priorities for action and build a framework to allocate resources of the national Society. The Society enters into affiliation agreements with the New Brunswick and Prince Edward Island provincial associations.

1991:
The Society enters into an affiliation agreement with the Newfoundland provincial association.

1993:
The Alzheimer Society goes nationwide, with the signing of formal affiliation agreements with the Quebec and Ontario provincial associations.

1994:
The Society develops a Unified Research Program to fund Alzheimer research across the country. The Board expands and approves vision statements for the future direction of the Society.

1998:
All provincial Alzheimer organizations now begin using the name Alzheimer Society and all accept a set of society-wide graphics standards to create "one look" for the organization nationwide. A Unity Task Force is struck to address issues of roles and responsibilities at the various levels of the organization and to develop a sound financial framework for raising and distributing revenues.

2001:
A Memorandum of Understanding (MOU), developed over the previous three years, is signed by the Alzheimer Society of Canada and its partner members (provincial Alzheimer Societies). The MOU establishes a common understanding and direction for future activities of the Society. This document marks an important milestone in the growth of the organization. A Planning Assembly builds on the momentum of the signing of the MOU to agree on strategic priorities and launch the Society's Strategic Planning Process.

2003:
A person with dementia joins the Alzheimer Society's national Board of Directors to provide a key perspective and help direct the Society's work.

2004:
The Alzheimer Society of Canada and the National Advisory Council on Aging join forces in calling for a National Strategy on Alzheimer's Disease and Related Dementias. While provincial Alzheimer strategies currently exist, a co-ordinated and comprehensive approach is required at the national level involving government, agencies and people affected by Alzheimer's disease or a related dementia. The two organizations continue to work towards making the National Strategy a reality.

2004-2005:
People with early stage Alzheimer's disease and dementia are contributing on Provincial and Chapter boards and in other volunteer capacities across the country.

2006:
The Alzheimer Society recognizes the 100th anniversary of the identification of Alzheimer's disease. Dr. Alois Alzheimer identified the disease in 1906.

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This page last reviewed/revised November 2006.
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