|
The
following sites may be helpful if you're looking for
further information on Alzheimer's disease, related dementias,
caregiving or aging.
Please
note that the Alzheimer Society of Canada is not able
to guarantee the accuracy of the information on these
websites, or endorse products or services offered through
them. You should discuss the accuracy of information
you find on the Internet with your doctor or health-care
provider.
Online
resources for people with Alzheimer's disease and related
dementias
Alzheimer's Forum -- a website produced by and for people with dementia
This small group of people with dementia from the West Kent area of the United Kingdom would like to establish contact with other people who are in the same situation as them. They invite people to contribute items to their website stories about personal experiences, coping strategies, anecdotes, items of humour, poetry or prose.
DASN
International (Dementia Advocacy and Support Network)
A worldwide organization by and for those diagnosed with
dementia, working together to improve quality of life
DASN
(Dementia Advocacy and Support Network)
A dementia patient and supporters non-profit organization
working to improve the lives of all people with dementia
of any kind. This online community is the "workplace" of
DASN International, with a message board, an e-mail list
and a chat room.
DementiaGuide
DementiaGuide.ca is a website to help people with Alzheimer's disease and their caregivers recognize, understand, record and monitor their symptoms through an interactive tool. For more information on this tool including subscriber cost, please visit the site.
Forums
and chats for people with dementia
Alzheimer Society of Canada Message Board
Alzheimer's
Association Message Board and Chat Rooms
DASN
(Dementia Advocacy and Support Network) (daily
real-time chat at 3 p.m. EST and 9 p.m. EST)
Join the DASN e-mail community. It is open to persons with dementia and others
willing to work toward DASN goals.
Personal
Web pages by people with dementia
Please
visit the DASN
International (Dementia Advocacy and Support Network) site
to find links to personal Web pages created by DASN
members who are living with dementia.
Writings
by people with dementia
Visit
The
Writing Room in the Creative Space section of this
site.
in
our own words
This creative writing project
in Glasgow, Scotland lets people with dementia who
are living in Glasgow City Council residential care
homes create writing, have their voices heard and be
recognised as authors in their own right.
Aging
AgeSource/AgeStats
Worldwide™
Identifies several hundred information resources in some 25 countries which are significant either in size or in their unique coverage of particular aging-related issues. The resources include, among others, clearinghouses, libraries, databases, training materials, major reports, and Web metasites. You may search either or both databases at one time. Access is free-of-charge.
Calendar
of International Aging Conferences
A listing of upcoming national and international gerontological
events from the International Association of Gerontology.
Canadian Coalition for Seniors' Mental Health (CCSMH)
The CCSMH provides its Educational Guides for Seniors and Families free of charge. The information in these guides will help older adults to make informed decisions about their health care and build effective relationships with their health care providers.
Canadian
Study of Health and Aging
This study of the epidemiology of dementia in Canada has
followed over 10,000 elderly Canadians over a 10-year period
from 1991 to 2001, collecting a wide range of information
on their changing health status over that time. This website explains the study goals and methods, introduces you
to the data collected and gives a summary of the main results.
Canadian
University Affiliated Centres on Aging
The Regional Geriatric Program of Toronto posts a list
of Centres on Aging on their website.
Alzheimer's disease and related dementias
Agevillage.com
This site offers information on Alzheimer's disease in French.
Alzheimer-bottin
This site offers links to sites around the world with Alzheimer's disease in French.
Alzheimer's
Disease Education and Referral (ADEAR) Center
This site offers current, comprehensive Alzheimer's disease
information and resources from the U.S. government's National
Institute on Aging. It includes a database of clinical
trials in the U.S.
Related
dementias:
Alzheimer
organizations
See
our listing of Canadian and international Alzheimer
organizations.
Alzheimer's
Disease International
An umbrella organization of 50 Alzheimer Associations from
around the world.
Alzheimer
research
10/66
Dementia Research Group
Less than 1/10 of all population-based research into dementia
has been directed towards the 2/3 or more of all people
with dementia who live in developing parts of the world.
This group of researchers, affiliated to Alzheimer's Disease
International, has linked together to try to redress this
imbalance. It encourages active collaboration between research
groups in different developing countries, and between developed
and developing countries.
Alzheimer
Research Forum
Promotes scientific communication and creative thinking
in the search for the causes and treatments for Alzheimer's disease.
The Institute for Life Course and Aging (ILCA)
Seminar presented by Dr. Mary Mittelman, of New York University's School of Medicine, at the ILCA, on September 10, 2007, entitled "The Science Behind Caregiver Interventions: Research Trends".
Dr Mittleman's research indicates that offering training to caregivers of people with Alzheimer's disease not only eases their strain but has been found to delay the need for long term care for an extra 1.5 years.
The
Kenneth G. Murray Alzheimer Research and Education
Program
A unit of the Centre for Applied Health Research (CAHR)
of the Faculty of Applied Health Sciences, University of
Waterloo in Ontario, this program serves as an information
and communication link between researchers and practitioners.
MAREP is in partnership with six long-term care facilities
(Innovation Centres) where onsite research on best practices
and innovative approaches is conducted.
Research Canada
An Alliance for Health Discovery is a not-for-profit,
voluntary organization that is a strong national voice for health research
advocacy in Canada. Working for all Canadians, its membership is drawn from
all sectors dedicated to increasing investments in health research,
including the leading health research institutes, national health charities,
hospitals, regional health authorities, universities, private industry and
others.
Caregiver
resources
Canadian Virtual Hospice
The Canadian Virtual Hospice is an online community where you can find answers to your questions or share your experiences with serious illness or grief. Just like a hospice, the Canadian Virtual Hospice provides information and support for physical, emotional and spiritual concerns related to death and dying.
DementiaGuide
DementiaGuide.ca is a website to help people with Alzheimer's disease and their caregivers recognize, understand, record and monitor their symptoms through an interactive tool. For more information on this tool including subscriber cost, please visit the site.
ElderCare
Online
ElderCare Online is a beacon for people caring for
aging loved ones. Whether you are caring for a spouse,
parent, relative or neighbor, this site provides an online
community where supportive peers and professionals help
you improve quality of life for yourself and your elder.
Includes chats for caregivers.
Empowering
Caregivers
Empowering Caregivers offers comprehensive emotional and
spiritual support for all caregivers through experts, articles,
newsletter, journal exercises, spotlights, healing circle,
resources, inspiration, humor and much more. It is about
choices, healing and opening to love.
Family
Caregiver Alliance -- National Center on Caregiving
Programs
to support and sustain the important work of families
in the U.S. caring for loved ones affected by chronic,
disabling health conditions.
How
to Care
A Canadian site to help caregivers manage the realities of caring for an aging
parent, a chronically ill spouse or friend, and themselves.
The
Victoria Order of Nurses (VON Canada)
A national health care organization and a federally
registered charity that has been caring for the lives and
well being of Canadians in their homes and local communities
since 1897.
Down
Syndrome
Canadian
Down Syndrome Society
Information, support and networking opportunities for
parents and professionals -- to enhance the quality of
life for all individuals who have Down
syndrome.
For Children
Just 4 Kids
A section of the Alzheimer Society Of Saskatchewan website where kids can have fun and learn all about Alzheimer's disease at the same time. The DoRIGHTERS have a family member with Alzheimer's disease and they don't know what to do. Kids can help them learn to DoRIGHT by working through activities with them.
Government
resources
Canada
Benefits -- Connecting You to Government Benefits
This site offers Canadian citizens government-wide information
about financial benefit programs for individuals. Of particular
interest may be the pages for seniors, people with disabilities
and veterans.
Canadian
Health Network
The Canadian Health Network (CHN) is a growing
network, bringing together resources of leading Canadian
health organizations and international health information
providers. The resources identified here will help you
take care of yourself and the people you care about --
with tips on how to improve your health and well-being.
Disability
Tax Credit (DTC)
The "disability amount" on your income tax return
reduces the amount of income tax that a person with a disability,
or their supporting person, might otherwise have to pay.
Visit the Government of Canada
website for more information about this and about medical
expenses you can claim.
Division
of Aging and Seniors
Health Canada's Division of Aging and Seniors website,
with information on federal programs, statistics on aging
in Canada and more.
Human Resources and Social Development Canada
HRSDC's mission is to build a stronger and more competitive Canada, to support Canadians in making choices that help them live productive and rewarding lives, and to improve Canadians' quality of life.
Physician
education
The
Foundation for Medical Practice Education
The
Foundation for Medical Practice Education (FMPE)
is a Canadian non-profit organization dedicated
to the development, production, and evaluation
of educational programs for community-based
family medicine and general practitioners.
International
Psychogeriatric Association
Includes a section on Behavioral and Psychological
Symptoms of Dementia (BPSD).
The
Physician Education Website for Alzheimer's Disease
and Related Dementias
Part of a multi-faceted Ontario education program to inform and promote practice
change on Alzheimer's disease and related dementias. The program's comprehensive
educational objectives cover: the diagnosis and treatment of Alzheimer's disease and related dementias, the impact of dementia on the person, family and caregivers,
an awareness of the importance of community resources and an interdisciplinary
approach to care.
|
