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Alzheimer Care: Late Stage and End-of-life Care
   
 
In this section:
Introduction
Visiting in the Late Stage
Care Strategies
After Death -- Getting Support

Care Strategies in the Late Stage

The following chart outlines the different care strategies that you will need to understand when making decisions in the late stage of the disease:

Extraordinary medical care The goal of this type of treatment is to prolong life using all available types of treatment. For example, for an individual with advanced Alzheimer's disease, it might involve using kidney dialysis for kidney failure, tube feeding when swallowing is no longer possible, or cardiopulmonary resuscitation (CPR) to restart the heart.
Conservative medical care The goal of this type of treatment is to maintain or improve current health status. For an individual with Alzheimer's disease, it might include using blood pressure medication to treat high blood pressure, insulin for diabetes or setting a fractured hip.
Comfort or palliative care The goal of this type of treatment is to provide comfort when there is no treatment for an illness and death is near. Pain control is a priority, as is the emotional and spiritual support to the individual and the family.

Another decision to be considered in the late stage is whether or not an autopsy should be performed. For some, knowing conclusively if the person had Alzheimer's disease is extremely important. Others may wish to participate in research by donating brain tissue. Plans for an autopsy or tissue donation must be put in place prior to the person's death. Speak to the doctor about your wishes. Since protocols vary from region to region, your local Alzheimer Society can help you with questions you may have.

For information on donating brain tissue for research, contact the following centres:

Maritime Brain Tissue Bank
Department of Anatomy & Neurobiology
Room 12D, Faculty of Medicine
Dalhousie University
Halifax, Nova Scotia B3H 1X5
Phone: (902) 494-2007

Douglas Hospital Research Centre Brain Bank
(Donors must be Quebec residents)
6875 LaSalle Blvd.
Verdun, QC H4H 1R3
Tel: (514) 761-6131, ext. 0 and ask for the Brain Bank
E-mail: brain.bank@douglas.mcgill.ca
Web: http://www.douglasrecherche.qc.ca/brain-banks/general-bank.asp?l=e

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Late Stage and End-of-life Care: Intro | Visiting in the Late Stage
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This page last reviewed/revised March 2009.
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