Other resources for the person with dementia
First Steps for People with Dementia and Caregivers
This 4 week (2hrs/week) series helps people newly diagnosed with a dementia and their care partners understand and their diagnosis and the changes they experience. It offers participants an opportunity to share and connect with others. Topics covered during theis course include:
- What is dementia?
- Memory loss and changes to the brain
- Coping strategies
- Drugs and treatment
- Future planning
- Community resources
Below are some resources you may find helpful.
For people with Alzheimer's disease and other dementias
First Steps: For Those Recently Diagnosed with Alzheimer Disease
Brochure. Toronto: Alzheimer Society of Canada.
By Us For Us Guides©— inspirational guides for people with early stage memory loss. (contact MAREP to order a guide)
Bryden, Christine. Dancing with Dementia: My Story of Living Positively with Dementia. Jessica Kingsley Publishers, 2005. ISBN 1-84310-332-X. www.jkp.com.
Harris, Phyllis Braudy (ed.). The Person with Alzheimer's Disease: Pathways to Understanding the Experience. Baltimore, MD: Johns Hopkins University Press, 2002. ISBN 0-8018-6877-7. www.press.jhu.edu.
Online resources for people with Alzheimer's disease and other dementias
Alzheimer's Disease International I Can! I Will! Idea Library.
A worldwide organization by and for those diagnosed with dementia, working together to improve quality of life
DASN (Dementia Advocacy and Support Network)
A dementia patient and supporters non-profit organization working to improve the lives of all people with dementia of any kind. This online community is the "workplace" of DASN International, with a message board, an e-mail list and a chat room.
DementiaGuide.ca is a website to help people with Alzheimer's disease and their caregivers recognize, understand, record and monitor their symptoms through an interactive tool. For more information on this tool including subscriber cost, please visit the site.
Personal Web pages by people with dementia
Please visit the DASN International (Dementia Advocacy and Support Network) site to find links to personal Web pages created by DASN members who are living with dementia.
Last Updated: 11/08/2017