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Other resources for caregivers

The Alzheimer Society of Muskoka provides many opportunities for caregivers of people living with dementia to receive education.  The Society educates caregivers through the First Link® Learning Series and by providing additional education materials.  The Alzheimer Society of Muskoka has many great resources to help support caregivers in their role.  Resources are available and listed below.   Contact the  Alzheimer Society of Muskoka for more information.

First Link® Learning Series

The First Link® Learning Series is made up of five distinct courses that are progressive in nature.  Each course builds upon the other to provide participants with a comprehensive overview of dementia, coping strategies, resources and support systems.  These courses are facilitated y staff of the Alzheimer Society of Muskoka.  For more information about the First Link® Learning Series or to register for an upcoming workshop, please contact (705) 645-5621 or toll free 1 (800) 605-2075.

The five courses that make up the learning series are:

  • First Steps for persons with dementia and their family
  • Next Steps for families and friends
  • Options for care
  • Care in the later stages

Next Steps for Family and Friends

This 4 week (2hrs/week) series will offer family members and friends caring for persons with dementia an overview of dementia.  Topics include:

  • What is dementia?
  • Memory loss and changes to the brain
  • Coping strategies
  • Drugs and treatments
  • Future planning
  • Community resources

Care Essentials

This 4 week (2hrs/week) series will offer family members and friends care for persons with dementia problem solving strategies, communication approaches and available avenues for support.  Topics include:

  • Progression of dementia
  • Understanding behaviour 
  • Day-to-day care
  • Community resources

Options for Care

This 6 hour series will offer family members and friends and opportunity to evaluate their current caregiving needs and explore other possible care options available, including long-term care.  Topics include:

  • Where to turn when care needs are increasing
  • Long-term care - how the system works
  • Coping with change - how to make the transition

Care in the Later Stages

This 6 hour series will help family members and friends of persons with dementia understand what to expect in the later stages of the disease.  The series will explore how participants can provide comfort to the person as well as review the experiences of grief and loss.  Topics include:

  • Natural course of the later stages
  • How to recognize pain and distress
  • How to provide car that promotes dignity, comfort and quality of life

 

Below you’ll find some resources that may be helpful.

Alzheimer Society of Canada. Alzheimer Journey: The Road Ahead, Module 1. Toronto: Alzheimer Society of Canada, 1998.

Alzheimer Society of Canada. Alzheimer Journey: On the Road, Module 2. Toronto: Alzheimer Society of Canada, 1998.

Alzheimer Society of Canada. Alzheimer Journey: At the Crossroads, Module 3.  Toronto: Alzheimer Society of Canada, 1998.

Alzheimer Society of Canada, Alzheimer Journey: Understanding Alzheimer Disease: The Link Between Brain and Behaviour, Module 4. Toronto: Alzheimer Society of Canada, 2002.

Alzheimer Society of Canada. Guidelines for Care. Toronto: Alzheimer Society of Canada, 1992. ISBN 0-9695301-2-9.

Alzheimer Society of Canada. A Personal Care Book. Toronto: Alzheimer Society of Canada, 1993.

For family caregivers

Alzheimer's Disease International I Can! I Will! Idea Library.

Regional Geriatric Program of Eastern Ontario. From Home to Retirement Home: A Guide for Caregivers of Persons with Dementia.

Bowlby Sifton, Carol. Navigating the Alzheimer's Journey: A Compass for Caregiving. Health Professions Press, 2004. ISBN 1-932529-04-7. www.healthpropress.com.

Mace, Nancy L., and Rabins, Peter V. The 36-Hour Day: A Family Guide to Caring for Persons with Alzheimer's Disease, Related Dementing Illnesses, and Memory Loss in Later Life. Baltimore, MD: Johns Hopkins University Press, 2006 (4th ed.). ISBN 0-8018-4034-1. www.press.jhu.edu.

Mindszenthy, Bart and Gordon, Michael. Parenting your Parents: Support Strategies for Meeting the Challenge of Aging in the Family. Dundurn Press, 2005 (2nd ed.). ISBN 1-55002-380-2. www.dundurn.com.

Tapp-McDougall, Caroline. The Complete Canadian Eldercare Guide. John Wiley Canada, 2004. ISBN 0- 470-83449-8. http://ca.wiley.com/WileyCDA.

Government resources

Canada Benefits -- Connecting You to Government Benefits
This site offers Canadian citizens government-wide information about financial benefit programs for individuals. Of particular interest may be the pages for seniors, people with disabilities and veterans.

Canadian Health Network
The Canadian Health Network (CHN) is a growing network, bringing together resources of leading Canadian health organizations and international health information providers. The resources identified here will help you take care of yourself and the people you care about -- with tips on how to improve your health and well-being.

Disability Tax Credit (DTC)
The "disability amount" on your income tax return reduces the amount of income tax that a person with a disability, or their supporting person, might otherwise have to pay. Visit the Government of Canada website for more information about this and about medical expenses you can claim.

Division of Aging and Seniors
Health Canada's Division of Aging and Seniors website, with information on federal programs, statistics on aging in Canada and more.

Human Resources and Social Development Canada
HRSDC's mission is to build a stronger and more competitive Canada, to support Canadians in making choices that help them live productive and rewarding lives, and to improve Canadians' quality of life.


Last Updated: 01/06/15
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