Education for the caregiver
The Alzheimer Society of Grey-Bruce has been a leader in dementia education in Grey and Bruce counties since 1986. The Society educates caregivers through the First Link® Learning Series and by providing additional educational materials.
The Society has many great resources to help caregivers with the issues they face in their caregiving role. Resources available are listed below.
The Society offers the First Link® Learning Series for people who are caring for someone with Alzheimer’s disease or other dementia.
First Link® Learning Series
The First Link® Learning Series is made up of five distinct courses that are progressive in nature. Each course builds upon the other to provide participants with a comprehensive overview of dementia, coping strategies, resources and support systems. These courses are facilitated by staff of the Alzheimer Society of Grey-Bruce and feature various community partners as guest speakers.
For more information about the First Link® Learning Series or to register for an upcoming workshop, please contact our Education Coordinator at firstname.lastname@example.org or call 519-376-7230 or toll-free 1-800-265-9013.
The five courses that make up the learning series are:
- First Steps for persons with dementia and their family
- Next Steps for families and friends
- Care essentials
- Options for care
- Care in the later stages
Next Steps for families and friends
This series will offer family members and friends caring for persons with dementia an overview of dementia. Topics covered in this course include:
- What is dementia?
- Memory loss and changes to the brain
- Coping strategies
- Drugs and treatments
- Future planning
- Community resources
This series will offer family members and friends caring for persons with dementia problem solving strategies, approaches for communications and available avenues for support, all of which can strengthen their ability to provide care. Topics covered in this course include:
- Progression of dementia
- Understanding behavior
- Day-to-day care
- Community resources
Options for care
This series is to help family members and friends caring for people with dementia evaluate their current care giving needs and explore other possible care options available, including long-term care. Topics covered in this course include:
- Where to turn when care needs are increasing
- Long-Term Care – how the system works
- Coping with change – how to make the transition
Care in the later stages
This series is to help family members and friends of persons with dementia understand what to expect in the later stages of the disease. The series will explore how participants can provide comfort to the person as well as review the experiences of grief and loss. Topics covered in this course include:
- Natural course of the later stages
- How to recognize pain and distress
- How to provide care that promotes dignity, comfort and quality of life
Below you will find some resources that may be helpful.
Alzheimer Society of Canada. Alzheimer Journey: The Road Ahead, Module 1. Toronto: Alzheimer Society of Canada, 1998.
Alzheimer Society of Canada. Alzheimer Journey: On the Road, Module 2. Toronto: Alzheimer Society of Canada, 1998.
Alzheimer Society of Canada. Alzheimer Journey: At the Crossroads, Module 3. Toronto: Alzheimer Society of Canada, 1998.
Alzheimer Society of Canada, Alzheimer Journey: Understanding Alzheimer Disease: The Link Between Brain and Behaviour, Module 4. Toronto: Alzheimer Society of Canada, 2002.
Alzheimer Society of Canada. Guidelines for Care. Toronto: Alzheimer Society of Canada, 1992. ISBN 0-9695301-2-9.
Alzheimer Society of Canada. A Personal Care Book. Toronto: Alzheimer Society of Canada, 1993.
Resources for family caregivers
Regional Geriatric Program of Eastern Ontario. From Home to Retirement Home: A Guide for Caregivers of Persons with Dementia.
Bowlby Sifton, Carol. Navigating the Alzheimer's Journey: A Compass for Caregiving. Health Professions Press, 2004. ISBN 1-932529-04-7. www.healthpropress.com.
Mace, Nancy L., and Rabins, Peter V. The 36-Hour Day: A Family Guide to Caring for Persons with Alzheimer's Disease, Related Dementing Illnesses, and Memory Loss in Later Life. Baltimore, MD: Johns Hopkins University Press, 2006 (4th ed.). ISBN 0-8018-4034-1. www.press.jhu.edu.
Mindszenthy, Bart and Gordon, Michael. Parenting your Parents: Support Strategies for Meeting the Challenge of Aging in the Family. Dundurn Press, 2005 (2nd ed.). ISBN 1-55002-380-2. www.dundurn.com.
Tapp-McDougall, Caroline. The Complete Canadian Eldercare Guide. John Wiley Canada, 2004. ISBN 0- 470-83449-8. http://ca.wiley.com/WileyCDA.
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Division of Aging and Seniors
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Last Updated: 10/09/12