Living with dementia

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Advice from people living with Alzheimer's disease

Shared experiences is an information booklet intended to help answer some of your questions and address some of your concerns about living with Alzheimer's disease.

The Alzheimer Society met with groups of Canadians across the country who are in the early stages of Alzheimer's disease. They agreed to talk to us about what it is like to live with the disease. They shared their experiences, thoughts and feelings and offered practical tips and suggestions for others with the disease. They also told us how family members, friends, the Alzheimer Society and others can help.

While the information is specific to people with Alzheimer’s disease, it can also be helpful to people with other dementias.

We are indebted to these individuals who willingly offered their insights and experiences to assist in the creation of this booklet for people living with Alzheimer's disease. We have drawn on their comments to provide real-life examples for the text.

This booklet is also available in audio files. Read the whole booklet or listen to the material in segments at your own pace. Some topics deal with sensitive issues that you may not be comfortable dealing with right now. You can save them for later.

PDF Audio (mp3)
Part one - Emotions Part one - Emotions
Part two - Telling people Part two - Telling people
Part three - Learning about the disease Part three - Learning about the disease
Part four - Changes you may experience Part four - Changes you may experience
Part five - Continuing to care for myself Part five - Continuing to care for myself
Part six - Planning for the future Part six - Planning for the future

Last Updated: 01/22/15
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