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Physical changes at end-of-life

Dementia and end-of-life care

Caring at home

Providing care will become more challenging as the disease progresses and the person you are caring for becomes more dependent on you. If you are caring for the person at home, you will need to work more closely with a physician, visiting nurse, social worker, occupational therapist and home support services to create and carry out a plan for the best care possible through this stage of the disease.

As the person’s disease progresses and both of your needs change, you may need services such as home care, respite care, community programs like Meals on Wheels, and long-term care homes. Talk to your local Alzheimer Society to learn about the services that are available in your community. This can be a difficult time when you need more support for yourself. Try to carve out some time to take care of your own physical and emotional health too.


Because my parents took care of me for at least the first 18 years of my life, it felt right to me to take care of them in the final years of their lives. Being their caregiver was tremendously rewarding. But I couldn’t have done it all on my own. I was lucky to find some great volunteers to help out.” – Barbara Dylla, a former caregiver in Montreal


Next section: Care in a long-term care home or hospital

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